Systemic Mastocytosis: Communicating with a Purpose

Communication isn’t always easy, especially when you’re living with a rare disease like Systemic Mastocytosis (SM). In this session, we will explore how people living with SM, caregivers, and healthcare providers can effectively communicate to foster understanding of disease burden and share decision-making. Join us as we hear from real people in the SM community who have experienced difficulties with communication and how they’re overcoming these challenges in their everyday lives.