Upcoming Event
January 29, 2025
7:00 PM ET
Join us for an informative webinar where we'll separate fact from fiction in the world of systemic mastocytosis (SM). We will address common misconceptions and provide insights into living with SM, finding reliable information, and more. Whether you're a patient, caregiver, or healthcare professional, this session is designed to empower you with information about SM. Don't miss this opportunity to enhance your understanding and support the SM community!
Featured Session
Systemic Mastocytosis: Communicating with a Purpose
Communication isn’t always easy, especially when you’re living with a rare disease like Systemic Mastocytosis (SM). In this session, we will explore how people living with SM, caregivers, and healthcare providers can effectively communicate to foster understanding of disease burden and share decision-making. Join us as we hear from real people in the SM community who have experienced difficulties with communication and how they’re overcoming these challenges in their everyday lives.